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Smoke And Mirrors

Smoke and Mirrors

Smoke And Mirrors

For the Wex Mondays and Fotospeed challenges this week I have created another of my little still-life squares. I added a bit of smoke to the mirror using my vape but I must say it was harder to try and control than I thought it would be! I stacked nine images together so that I could get the smoke in all the areas that I’d wanted. I kept it soft like a sea mist. These little pieces are very self-reflective. There are many times that I feel like an empty shell, a pale reflection of the person I should have become. I can put on a mask but it’s all smoke and mirrors, tricks of the light. This shell is cracked. Not fit for purpose! Even a hermit crab wouldn’t want it. Half a life of Crohn’s will do that! It’s IBD awareness week with the theme Make The Invisible Visible (Crohn’s and Colitis) so this is a way of sharing something of the impact that the disease has had on me. I think if I took off that mask and lived showing people how I really felt all the time it would absolutely destroy me. I’m a rather fragile shell really. The mask is as much for myself as for anyone else. But still, there’s beauty even in an old, cracked and empty shell.

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Every Day Is Different: Day 5

Strength and Vulnerability

Every Day Is Different: Day 5

Butterfly

Handle them with care
So strong yet vulnerable
Delight in their flight

Shelter them from cold
Watch out for them as the sun
Warms their wings again

Dance with them in Spring
As you’ve never danced before
Celebrate sweet life

Every Day Is Different

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Every Day Is Different: Day 4

Hazel O'Connor

Every Day Is Different: Day 4

Every Day Is Different

Today didn’t start very well but it certainly ended on a high note! I was up less little more than an hour before having to take myself straight back to bed. I remembered to set an an alarm as I had an important date to make this evening! Having got up for the second time, I threw on some clothes, fed the cats and rushed off to get the train up to London to meet Simon and our friend Julia. Our destination was the beautiful Union Chapel venue in Islington for a 35th Anniversary screening of the film Breaking Glass.

Hazel and her band receiving applause

This was followed by a Q&A with Hazel O’Connor, a performance with her band, Sarah Fisher and Clare Hirst, who were then joined by a full choir in front of an audience that really was packed to the rafters! I was able to copy a couple of images from my camera onto my phone to process on the train returning home. The rest of my photos today were taken on the phone, including a lovely one of me and Simon that Julia kindly took for us! Lots of interesting purples for #PurpleFriday including Heather’s dress 🙂

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Every Day Is Different: Day 3

Chrysanthemum Explosion

Every Day Is Different: Day 3

#EveryDayIsDifferent #7daysofIBD #crohnscolitis

I thought you’d all like these wonderfully different chrysanthemums to mark the third day of Crohn’s and Colitis Awareness Week. Purple is the themed colour for IBD awareness and I’m having fun with my purple blooms. These ones always make me think of a big, colourful firework exploding! I really enjoy the way those petals start drooping as the flower starts to die back. Such interesting shapes 🙂

Every Day Is Different

Today I had a chat with a friend in Vienna who also has IBD. Messenger is a great way to keep in touch! Dani and I met over fifteen years ago. We were representing our country’s IBD Charities at European conferences for young adults with the disease. I helped organise one of these meetings here in London in 2000 and attended others in Amsterdam and Stockholm. They were all fun, informative and rewarding meetings. I’d never been to Sweden before and absolutely loved Stockholm itself!

My ears are improving with the antibiotics now and I have been less fatigued and more productive. Today was a good day 🙂 I’m hoping my energy levels will stay raised for the next few busy days! I may have to take naps between events but I am absolutely determined to have fun and get some new photography done too.

 

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Purple Friday

#PurpleFriday

Purple Friday – Part of Worldwide Crohn’s and Colitis Awareness Week

For any of my followers who don’t already know, I have Crohn’s. I was diagnosed nearly twenty years ago and have since undergone four major abdominal operations including having an ileostomy created; developed secondary Fibromyalgia, psoriasis, vulvodynia, ocular disease, dental disease, kidney stones, foliculitis, skin ulcers, allergies, abscesses, strictures, hair thinning and reflux; I’ve had countless colonoscopies, ileoscopies, barium meal x-rays, transfusions and blood tests; I’ve taken pretty much every medication ever used in Crohn’s, plus several more experimental treatments; I am now taking Azathioprine and Humira (adalimumab) injections which reduce my immune system, along with numerous other medications for symptoms of all my conditions and to counteract side-effects. I have a GREAT life; brilliant family and friends, two lovely cats, art and photography, poetry, music, travel, the great outdoors, the RHS, lots of children who aren’t mine but I love them all to bits, oh, AND next year I’m getting married to my wonderful man, Simon 🙂

For #PurpleFriday, patients, their families and friends have all been wearing purple and taking selfies to tell their stories and raise awareness of Crohn’s and Colitis all over the world. Instead of a selfie, I decided that sharing some of my favourite purple floral-photos was a much better way of telling people about myself. After all, Crohn’s is only part of my story! It’s also a great way for me to say thank to Crohn’s & Colitis UK (CCUK) for all they have done for me over the years and to send a big hug out to everyone around the world affected by these illnesses.

This is a gallery of posters shared by CCUK this week to raise awareness, please feel free to share them!